Well that long awaited day came; we left NH and moved to KS. It was 3 long days of driving but we made it with our sanity intact, thanks to some awesome travel kits, sent by my grandmother, and a DVD player. It took a few days but we found a wonderful home in a great neighborhood. We are close to the school and hospital and just a few minutes from the base. The kids love it here. We actually have a yard for them to run in they have used it every day that we've been here.
Micah did great! He is still happy and healthy. After we arrived I realized we were low on his meds (probably should have checked that before we left) so we made an appointment and met his new base pediatrician, Dr. DuBois. She's awesome! So sweet and very very thorough. She did not just assume she knew what was going on with Micah but asked me lots of questions and actually listened to me. She also put in the referrals for Micah's new team at Children's Mercy in Kansas City (BTW, we drove by it on our way through Kansas City). I should hear something back from TriCare soon and then we start making appointments. Dr. Cecchin gave us the name of a doctor he thinks is good enough to treat Micah. A Dr. Steven Kaine. I am anxious to meet him (Dr. Cecchin sings his praises) and have him look at Micah.
It feels weird to be so far from Boston. I know there is a hospital here that can handle him, but there is a voice in the back of my head that keeps saying "What if... What if...". We do have appointments for Micah in Boston next May so we will be going back. I refuse to give up Micah's Boston team. They quite literally know him inside and out. They know when he's okay and when something is really wrong. I have confidence there. Oh well, as we settle and I meet this new team I have no doubt my confidence will build here too.
Life is never static, it is always fluid; especially for a military family. Let the adventure begin!!!
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