GONE GONE GONE GONE G-O-N-E GONE!!!!!!

Just got back from Boston aaaaaaaand... THE G TUBE/ MIC-KEY BUTTON IS GONE!!!!!! G-O-N-E GONE!!!!! Dr. Zitimersky said that she and Dr. Brown agreed that Micah doesn't need his tubes anymore! They popped it out and placed a pressure dressing over the hole (which is icky) and we are done!!! GI will only follow him for growth and NOTHING ELSE!!!!!

Just updating...

The recent posts are from the last few days. It's been pretty crazy with Micah getting very sick, then miraculously getting better. I'm sorry I haven't updated in a while, though the last few days have been wild, life itself is hectic with just normal day to day life.

Home!!!

It is so good to be home. We weren't in Boston for very long and we did see some much loved doctors and nurses but it is so good to be home. The kids were very surprised to hear us pull in the driveway.Thank you everyone who prayed for Micah and made meals for my family. I really, truly appreciate all the love and support. Your prayers worked, Micah recovered faster than any of his medical team expected. He never "got worse" only BETTER. I think Micah proves prayer works.

Going home!!!!!

WE ARE GOING HOME!!!!!! THE DOCS WERE JUST HERE AND THEY ARE THRILLED WITH HOW GOOD HE LOOKS!!!! WE EVEN SAW DR. FYNN THOMPSON!!!! HURRAY WE ARE GOING HOME!!!!!!

A calm night!!

Micah had a great night!!! No wheezing at all!!! He's had his meds and now we wait for rounds. Hopefully the docs will be impressed and we can go home. Oh and his virus swab came back negative. Yay!!!

On the main floor...

We are on the main floor!!!!! Micah has a familiar nurse tonight and lots of nurse and doctor visitors who took care of him through his trials last year. They all fell in love again. They were so excited to see him and how good he looks now. Hopefully tomorrow we'll be home.

A bath and some fun...

Micah got a thorough scrubbing today. He was covered in tape glue and EKG goo. Now is looks and smells much better. He had a good sized lunch too. Now we wait for a bed to open up on the main floor. He's getting to rowdy for the CICU.

Waiting for a bed...

It looks like we are moving to the main floor today, as soon as a bed opens up. The CICU docs thought about discharging him today, but they decided to keep him here one more day. There is a good chance we good go home tomorrow!!!!

Out of the CICU soon...

Dr. Brown was just here and he said as long as Micah's next virus swab comes back negative, we'll be heading to the main floor today! Woohoo!!

St. Patrick's Day at the hospital...

Ah St. Patrick's Day in Boston...I wonder what the hospital will do. Micah had a good night last night. One little rough patch of wheezing around midnight but after a breathing treatment and a midnight yogurt snack he was just fine and snuggling his Siah puppy and snoozing away. I am so proud of my trooper!!!

Full and resting...

Micah is back to sleep. He had a bottle and a yogurt so he has a happy belly. His breathing is good right now, here's hoping it lasts through the night. Dr. Brown was here to see him (I said "Hi" from you Laura) and he's hoping Micah will only be here a few days. We have to get him over the rough patch.

Finally some food...

Micah is getting his first bottle since about 9 last night. He is such a happy baby right now. They've been giving him his breathing treatments and he seems to be doing okay. They are thinking about moving him to the main floor. The only trouble is nights are the hardest for him.

Back in the CICU...

Micah is in the CICU at Boston Children's. He is finally sleeping but he is still breathing very fast. He has RSV, Bronchiolitis, and a double ear infection. His RSV is progressing quickly and they are worried his lungs (which are infected) won't be able to handle it well. They have him on high power IV antibiotics.

Scary Night...

Micah has just been air lifted to Boston Children's. He began struggling to breathe at about 2:30 and none of our home therapies works. I brought him to ER and they tried to slow his breathing and couldn't so they call for the helicopter to come get him. He has probably just landed at the hospital. I'll be with him as soon as I can. Please pray, they think his RSV is getting worse.