I really need to keep up on this blog :-)

Sheesh, it's been so long since I updated this page. Micah is doing great!!! In January, he began taking Enalapril to help ease the pressure and work on his heart. After an echo, he was showing signs of heart failure in his left ventricle. The doctors decided to try medication before looking at more surgical options. Their hope was that the weakness/failure was due to Micah's heart working too hard and it wasn't able to rest and heal. The Enalapril is a wonder drug!!! Within just a week there was a visible change in Micah. He began growing and putting on weight!! In January he was barely in the 10% for his age. After his last echo, February 28, he was in the 37.9% weighing 29 lbs and he was 34 inches. Not only was he grown but his heart was healing. The hole in his heart that had been patched was finally completely healed and his left ventricle was finally recovered and pumping the way it should. His lungs were clear and his liver was back to it's normal size. Since starting the medication, Micah only naps maybe 4 or 5 times a week. He is full of energy and even more playful than he was before his new pacer and medication. He does need to sit and rest for a little while if he has been running or playing hard, but that is normal for TOF babies. Dr. Gauthier was thrilled with his progress. She said that the only "concerns" in his heart were all Tetrology related. Things we already knew about and have plans for. We'll be going to Boston on April 10 so Dr. Brown and Dr. Cecchin can see him and run their own tests. They want to get their hands on him one more time before we move to Kansas in May. I am so glad they are too. I am very nervous about this move and how he'll handle it. Knowing his doctors have seen him and they say he's okay will make moving a lot easier. Thankfully we are keeping all of our doctors here in Boston, we'll simply come back once or twice a year to see them. We''l have local doctors in Kansas too, but all decisions will be made by our Boston doctors. We love them so much. They care so much for and about Micah and that gives us so much comfort. Knowing that the best doctors are following him and doing everything they can to keep him healthy is wonderful. Thank you all for your prayers and support these last 2 1/2 years. I'll keep you updated about the April appointment.