DEAD LINE!!!!!!

WE ARE WALKING IN THE N STAR WALK FOR CHILDREN'S HOSPITAL!!!!! WE HAVE FORMED TEAM MIGHTY MICAH!!!!!!!!! BUT THE DEAD LINE TO GET DONATIONS IS COMING UP FAST AND WE NEED A LOT OF HELP!!!!! PLEASE HELP US HELP THE HOSPITAL THAT SAVED OUR SWEET MICAH'S LIFE MANY TIMES!!!!!!!!

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Children's Hospital Boston - NSTAR's Walk for Children's Hospital Boston 10 - 's Page

Children's Hospital Boston - NSTAR's Walk for Children's Hospital Boston 10 - 's Page

Many many WONDERFUL updates!!!

MICAH HAS BEEN DISCHARGED!!!!! WE ARE ON THE TRAIN GETTING READY TO HEAD BACK HOME NOW!!!!!!!!!!!!! We'd already be heading back if the cab driver I got didn't take the LONG "scenic" route through Boston. He sure ran up the meter too, we missed our original train. But we are on the train now, and VERY excited to be going home again!

I got Micah's nebulizer!!!!! We are one step closer to coming home...I already got our train ticket and Micah's nurse just took out his IV!!!!! YAY!!!!!

We got the date for Micah's next surgery...On May 27th Micah will be going back into the Operating room to have the cleft in his soft palate and to have tubes placed in his ears...it's a more minor surgery (if surgery on your baby could ever be considered minor)...but this will, God willing, be his last surgery....hopefully the rest of his life will be nothing more than a few periodic procedures

Going home!!!!! (maybe)

So.....yeah.......Dr. Brown was just here (Yay!) and he said the Micah is looking
REALLY good....He and the other doctors are thinking about sending him
home....possibly today....They are trying to track down a take home nebulizer....Micah
had a mucus plug stuck in between his nose and throat that was obstructing his
breathing...They are still chalking up the other times he stopped breathing to reflux, but
now they are treating his breathing troubles separately....which is good...Micah has a
cold which has hit him kind of hard, but he is looking SO MUCH better....He has been
able to tolerate his feeds and keep his SATs up on his own and he's also not getting
exhausted from just trying to breathe....which means he has met the requirements the
doctors set for him to go home...He has worked hard and had to put up with having his
nose mouth and throat vacuumed out every two hours like a champ...He is a fighter!!!

A mini update....

Micah's nurse was just here and one of the viral tests came back negative. YAY!!!! We are still waiting on one more. But they are thinking he had bronchiolitis, which is just a viral infection of the lungs. Also his white count is back down to 10 which is normal. It looks like his body is fighting this thing, we just need to know what it is.

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Breathing!

The cardiology team was just here! His heart is still doing awesome! Yay! They are
treating this as a virus. Unfortunately there is no medicine to fight viruses, you have to
fight them yourself. His white cell count is up to 17, so something is definitely brewing
inside him. He will stay here in the hospital until he can keep his oxygen SATs up, can
tolerate feeds without hurting his breathing (which shouldn't happen anyway) and he can
breathe well without tiring out. Right now he definitely can't do that. They will still be
giving him breathing treatment around the clock, and in a little while they will be
restarting his feeds. Yay! Unfortunately what is a minor annoyance cold for us, could
turn into pneumonia for him. They are working very hard to keep that from happening.
After every breathing treatment he gets, they do chest PT on him and then suction his
nose and throat to clear away the mucus. That will hopefully help it to not settle in his
lungs. He's still coughing well, which is a wonderful thing. Please pray for his continued
strength to breath on his own!!!!!

Quarantined!!!!!!

He is doing okay right now, but they have quarantined. They think he may have a respiratory virus and it is making very difficult for him to breathe. He has very noisy breathing and he is working hard for air. He is under many precautions to keep new germs from coming his way. He is NOT on oxygen, which is a good sign. Please pray that the results of the virus cultures come back soon so they can start treating him!!!

Hopefully by morning some of his tests will have come back. They are treating him with nebulizers and giving him IV fluids. He tolerated his feeds today very well, but they have stopped them for now just to give his body a break. I am staying with him, and I can see just how restless his sleep is. He is pulling hard for air, but his stats are still in the mid to upper 90s. PLEASE PRAY THAT HIS LUNGS OPEN SOON!!!!!!!!!!!!!

Yet another horrible night, and back to Boston!!!!!!!!!!!!!

MICAH IS IN AN AMBULANCE HEADING BACK TO BOSTON NOW!!!! HE BEGAN STRUGGLING TO BREATHE AGAIN AND TURNED GRAY!!!! PLEASE PRAY THAT THE DOCTORS FIGURE THIS OUT AND EASE HIS BREATHING!!!!

Micah arrived at Children's in Boston about 4am this morning. He is stable. Susanne will be going down sometime today. Keep her in prayer too as she sprained her wrist in a fall last night. Thanks everyone!

Children's Hospital Boston Walk!!!!

This June we are walking in the N Star Fundraising walk for Children's Hospital Boston. We have created Team Mighty Micah!!!! This hospital has done SO many wonderful things for our little man and have saved his life in more ways than I can count. Please donate to this wonderful cause and more wonderful hospital if you can! I would love to give something back to the Doctors and Nurses who work so hard and NEVER give up on Micah or any of the other thousands of patients from all over the world that they see every year. They truly are Angels sent by God!!!!

https://howtohelp.childrenshospital.org/walk/pfp/?TeamID=KS0056

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