More troubles for Micah

The following are the updates from last Friday from Children's Mercy Hospital. Boston discovered something was wrong. They were right...

Pace maker check shows Boston was right. There is an issue. Now we are waiting on an x ready. Feeling so nervous.

Two of the pacer leads have broken. Only one lead is working to pace his heart. They are reprogramming him now and I need to figure out when and where his surgery should be done. It needs to be done VERY soon. Now I'm really worried. Please please please pray!!!!!

Finally home after a scary/stress filled day. Kansas City is going to send all the info they gathered to Boston and will talk with the cardio team there. Decisions need to be made soon. I'll be talking to Boston myself next week to figure out what I'm supposed to do. Micah was amazing through the whole thing. He stayed still and was very obedient for the doctors. The repeatedly called him the best patient they had. He is still his normal self and the new settings for his pacer have given him some time but he'll be in an OR soon. Please pray the last lead doesn't break. It's keeping his heart beating.

All those medical classes came on handy last night. I spent the night checking Micah's pulse and breathing and cap refill. He was fine. Steady breathing, strong, stay pulse and good cap refill. I am such a mess now. I really want to get back to Boston. Micah is fine today. Running around being his normal ornery self. If I hasn't seen the x rays myself I wouldn't believe them.

After some recently discovered info, Micah will be having his surgery in Boston. Come hell out high water. Even if I have to put Micah in a stroller and walk from Kansas to Boston, it will be done there.

Micah's heart is currently beating with one pacer wire. We need to get him back to Boston as soon as we can. This week will involve many many phone calls to insurance, hospitals, and the military to get things set up for us to get Micah the care he needs.