Off Oxygen!

Micah is OFF the oxygen!!!!!!!!!!! He is sound asleep he is breathing GREAT!!!!!!!!! They are going to move his feeding tube in a little while!!!!!!!! His nurse practitioner told me that Micah has to prove he can eat well on his own and he'll be able to go home!!!!!!!!! WE MAY BE HOME FOR THANKSGIVING!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Micah's x-ray looks better today than it did yesterday!!!! The nurse practitioner showed it to me and there is a HUGE difference!!! They are much much clearer and he is even coughing out the junk that is in his lungs. They are going to pull back the NJ tube and make it an NG tube. Then they will start bolus feeds!!!!
A quiet and peaceful night. Micah did awesome and slept until about 5:00am when the nurse started fussing with him. They are weaning off his oxygen and he's still doing great. He's off for an x-ray now and then a day of smiles and cuddles. I love 8 East!!! No sign of going home yet, but there is a light at the end of this tunnel.

Your prayers are working let's pray him home for Thanksgiving!!

Micah Has Moved to 8 East

Micah is in 8 East now!!!!!! He looks great!!!!! He's breathing great!!!!! He's been smiling and talking to me!!!!! And I DON'T have to ask to hold him!!!!!!! We've been cuddling since I got her!!!!!!! He even napped in my arms!!!!!!! They aren't promising me a time to go home, but he is definitely making progress!!!!!

Susanne made it safely back to Boston today. Praise the Lord that he has moved to 8 East. Continue tp pray!!

No Room For Micah

Don't worry this is not you might think it may mean. Here is an awesome update that Susanne got today.

I got a call from one of Micah's doctors today. They gave him and Echo, and he passed it with flying colors!!!!! He is still in the CICU, but only because the main cardiac floor still doesn't have room for him. He's just hanging out and bored out of his mind. I'm heading back to Boston tomorrow. I am SO excite to see Micah again!!!


Thanks again for praying for them. Please continue to pray that he will get even better so he can go home.

Micah Is Moving Out!!!!

I just found out from Micah's nurse that they are taking Micah OUT of the CICU and moving him to the main cardiac floor. (8 East) This is huge!!!! This means he's doing well enough and getting strong enough to be able to take a closer step to coming home!!!! They are still going to watch his breathing, but his doctors are confident enough to let him out of the CICU!!!!!!!!!

Here are some more updates from the last few days. Sorry I didn't get these on right away. I am in NJ with my family and I was in MD yesterday.
Just finishing up some packing and then heading for the train to go home for a little while. Micah is looking great. He slept well last night and is laying in his crib all wrapped up nice and snug and watching PBS. He is such a little couch potato!! But I'm really okay with that right now. His breathing is still awesome and he was able to yell at his doctors without trouble. I called the hospital and everything is going well there. Micah is doing great! He's breathing on his own without pressure support, and they have stopped his pain medications. He's still happy and alert and glued to his cartoons. He got bored yesterday and the nurse called in a volunteer who got to hold him for a few hours. I'm SO jealous!!

Mighty Micah Is Making Improvements!

Micah's right lung is looking better. Hopefully today he'll get off the pressure support for his breathing and get the heart pressure sensor line out. That would be wonderful! Micah is off the pressure support!!!! He's back to breathing on regular oxygen. His lungs are looking a lot better too. I'm still hopeful that this is something Micah can deal with on his own and he won't need another surgery. But we will cross that bridge if it come. Later on today his heart pressure sensor should be coming out. He's making some progress. The heart pressure sensor is out. That leaves just 2 IVs left in him. He's still doing well with his breathing so that's a plus. I got to hold him for a while this afternoon and he was smiling and talking to me too. They are weaning him more and more off his pain medicine and he's doing great. Amazing, with everything he's been through in 2 weeks.

Again thanks for praying for Micah!

A New Development For Micah

If it's not one thing it's something else. Micah's right diaphragm is showing signs of paralysis. The doctors are waiting to see if this is going to be a surgical issue or if Micah will be able to deal with this on his own. No chance of going home soon. Maybe in a couple weeks. Also Micah will be going to the Cath Lab this week or next week to remove some extra blood vessels around his heart that shouldn't be there. They aren't hurting him, but they aren't helping either.

Keep praying for Baby Micah and for strength for Susanne and Jason. I know that she and Jason appreciate all of the prayers on Micah's behalf. Please leave them a comment and let them know you are praying. I know from experience that reading people's comments helps them get through the day.

Here is the address for the hospital if you would like to send them a card or note of encouragement.
Children's Hospital Boston
300 Longwood Avenue,
Boston, MA 02115

A Quiet Night And A Surprise!

Here are the updates from yesterday. If I get anything new I will update it today.


I just had an AWESOME day!!!!! Jason came down to Boston and surprised me with an afternoon out, just the two of us. We haven't been out on our own (without any kids or pregnancies) in forever!!!! It was Wonderful!!! He even brought me flowers!!!! Today was wonderful, thank you Jason!!!!! I love you!!!! (last night at 6:15)


It was another quiet night. Micah is awake and alert and glued to the little t.v. over his bed. The doctors and nurses think he may have some fluid in or around his right lung, so they are monitoring that, but they are NOT planning to re-intubate him. He really looks much happier now than he did 3 or 4 days ago. (yesterday at 11:00 a.m.)