Prayers are needed...

In my search for answers for how to best care for Micah and to find support with other TOF parents I have met some incredible people. One of them has become a good friend and her baby needs prayer. Joanna is the amazing Mommy of Baby Gabriel. He is a new born with TOF. He has not had his repair yet but his health has become more concerning. His doctors have found fluid around his heart and he will need his repair in the next 6-8 weeks. This is a lot sooner than they originally anticipated. Gabriel, his Mommy, Daddy and big sister need our prayer. I know how they feel. Being scared about not knowing the future and watching your baby be uncomfortable and not being able to do anything about it. Please please pray for Gabriel, his family and his team.
The following is a post from his Mommy:

"I've debated posting, but decided that the people that care for updates will want to know so they can start praying again. The news we received yesterday wasn't what I hoped for. Gabriel has fluid around his heart, which was causing him pain. Gabriel is set to have his next open heart surgery in 6-8 weeks (or so), which is months sooner than we thought. He will have two procedures between now and then in the heart cath lab, where they will try to balloon his pulmonary artery. These procedures carry risks, but we have no choice. His pulmonary atresia(stenosis) is bad and it makes for more surgeries for my son. Please pray for these procedures to be successful, pray for my sons strength to get through all this. As I type this the tears stream down my face. I simply can't understand why this is happening."

Just a couple months later...

Well it's been a couple of months since I last posted on here. We have finally settled into life here in Kansas and since school has begun, we are getting into our patterns. Micah has been doing very well. We met his new cardiologist earlier this month and they ran every test on. (EKG, Echo) His heart looks great!!!! Dr. Kaine was very pleased with his pumping strength and that his rhythm looked good with the new pacing system. Dr. Kaine had decided to put him on the 6 months check up schedule. This is great news!!! This means the new heart meds and the new pacing system are still working the way we need them to.
We had a scary weekend during Labor Day weekend that had me worried that things were changing back to the way they were last year, but it turns out it was only he asthma/reactive airway disease acting up. We had to bring him to the ER a couple of times because he was wheezing pretty badly. He thankfully hasn't had a problem since then.
Just last week he began PreK and he L O V E S it!!! He is becoming such a big boy. He's almost completely potty trained (only rare accidents) and he loves being just like his big brothers and sister. 2 weeks ago we had his speech evaluation to try and continue his therapies from New Hampshire here. It turns out that, even though he has a little lisp and sometimes struggles to get his point across, he is at age appropriate development. He is in PreK as a Peer Example for the kids in his class who may struggle with speech or movement. I am beyond proud of him!!!!! He is amazing!!!!
There were times when he was a baby that I really wasn't sure we would see this day. His battle to be healthy has had so many twists and turns and ups and downs that even last year I was wondering if his heart would get the better of him. But his fight to stay with us and the amazing doctor's and nurses in Boston and New Hampshire have given him back to us again and we are moving forward with life. Micah is a great example of just how incredible and precious life really is and that it should be fought for with everything you have.