Back In Boston

They checked out Micah at the drs. Nothing significant going on other than the fever. They did however need him to go back to Boston to have the feeding tube put back in. Susanne and Rachel went down with Micah. There isn't anyone there to do it tonight, so they are admitting Micah for the night and doing the NJ tube tomorrow. They're starting him on an IV to give him the fluids he needs in the meantime. Once Micah is admitted, Susanne and Rachel will head home.

Please pray this will be a quick stay.

Going to the pediatricians

We're getting the three older kiddos ready to go to Oma's house. Micah's pediatrician's office has an opening this morning so we are taking him in, he still has a fever and he managed to yank his NJ tube. Hopefully they will be able to place it again, NJs are harder to place than NGs. They have no problem placing NG tubes. And last night was beyond horrible. Micah was crying and fussing all night long, which is bad in itself, but last night I managed to develop an ear infection. It's one of those where any sound over a whisper is like jamming a hot poker in your ear. This is going to be a long day.

Still home....but not very happy

The last few nights Micah has been awake and mad, which of course leaves us awake. This morning he spiked a fever. It started at 100 degrees and now it's up to 101 degrees. He has no other symptoms other than fever and misery. I'm thinking it's because he's teething (my big kids did the same when they teethed) but to be on the safe side I called Dr. Brown and Dr. Gates' office and spoke with a Pharmacist. They all agrees, separately, to just alternate the Tylenol and Motrin for the day. Dr. Brown and Dr. Gates' office are going to call tomorrow to check on him. As long as he doesn't develop any other symptoms he doesn't need to go to the ER. I am really praying this is nothing serious, he hasn't even been home for a week. PLEASE PRAY!!!!

HE'S COMING HOME!!! HE'S COMING HOME!!! HE'S COMING HOME!!!!!!

I JUST GOT OFF THE PHONE WITH MICAH'S NURSE!!!!!!!!!!!! THEY ARE GOING TO SEND HIM HOME TODAY!!!!!!!!!!!!!!! I CAN'T BELIEVE IT!!!!!!!!!!!!!!! HE'S ONLY BEEN IN THE HOSPITAL FOR 1 WEEK AND HE'S COMING HOME!!!!!!!!!!!!!!!!!!!!!!! I AM SO EXCITED!!!!!!!!!!!!!!!!! I CANNOT WAIT FOR HIM TO COME HOME!!!!!!!!!!!!!!!!!!!!!!!! I HAVE MISSED HIM SOOOOOOOOOOO MUCH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Making progress....

Okay, here's the scoop, Micah went in for his throat procedure today. He had a 60% narrowing in his throat. They took him too the operating room and they found that having the tube in his throat had already stretched his throat enough to where there was only a 30% narrowing which is reasonable (according to the doctors). Now we just have to put in an NJ tube and get him back on his feeds.

Micah had a great night last night. He slept well and is comfortable now. GI is supposed to see him today, which will be nice. He's also going to be moving to 8 East again today. I am so happy about that. If he keeps up the good work, then he may come home soon!

Just one more thing....

I just got a call from the ENT doc. They got done with the Bronch Scope and for that, just below his vocal cords, he has a 60% narrowing of his airway called Sub-glottal Stenosis. They are leaving him intubated tonight and bringing him back to the OR tomorrow. They are going to try to remove the scaring and dilate his throat.


Micah is out of the Cath Lab!!!!!! He did great and they were successful in dilating his pulmonary artery!!!!!! He came out of the anesthesia well too and is on his way up to the CICU!!!!! Now he will stay intubated for tomorrow. Hopefully this will bring him one step closer to being done with this and coming home.

Back in the hospital....again

All of the following began Saturday night....the last paragraph is from today

UNBELIEVABLE!!!!!!! HERE WE GO AGAIN!!!!!!! Micah began struggling to breath tonight and so we rushed him back to the local ER. Once again they were not comfortable treating him so now he's on his way back to Boston. (By Ambulance This Time) Jason and I are driving down tonight to see what will happen next. I think he's fine now that he's gotten a breathing treatment and coughed.

I just got off the phone with Micah's nurse...he had a good night last night...he's on a tiny bit of oxygen, just to keep his O2 stats up....He is up to his full feeds again (and I know he appreciates that)...The plan for today is to move him back out to the main cardiac floor....which is always good....unfortunately no firm plans will be made about Micah until tomorrow

Jacob, Emily and I went to Boston today to visit Micah. He's on the main cardiac floor now and completely off the oxygen. He goes to the Cath Lab tomorrow. He'll have his pulmonary branch dilated and have a Bronch Scope. Hopefully we'll get some answers. Jacob and Emily were so excited to see Micah again. When we got there, there was a volunteer talking to Micah. When he saw me he smiled and arched his back, like he wanted up. Then Jacob said "Hi baby Micah" and Micah just lit up! it was really sweet.



Sorry it took so long to update....life has been really crazy here