An amazing milestone

Micah's Dedication Video

An update...

Micah has been doing great lately. Aside from a couple of croup moments and the infection in his little boy parts he hasn't seen the inside of a hospital since his palate repair in May 2010. It's been incredible having him home and healthy. He has Physical Therapy with Miss Hannah every week and he has been exceeding all our expectations. He is standing on his own without having to hold anything for stability!!! He really is a miracle baby. With all that he has been through, he is one of the few people I have met in life with a good reason to be miserable and sour. He is a happy, thriving, and healthy baby boy. He loves playing with his brothers and sister, he loves to climb and "wrestle" Daddy, he has been climbing stair (with Mommy or Daddy with him) and there isn't a day that goes by without his smile and laugh. He is a blessing from God. Today, during PT, his big sister Emily got mad and started pouting. Micah stopped working with Miss Hannah and went to Emily and tried to make her happy. She smiled at him and gave him a hug and kiss. Miss Hannah and I were floored. I've never met a baby who was so caring!!!! I am so proud of my little man!!!! This Friday he will be 18 months old!!! Hurray!!!!! I can't wait!!!!!!

This really does explain it all...

One day my world came crashing down,
I'll never be the same.
They told me that my child was sick.
I thought, "am I to blame"?
I don't think I can handle this.
I am really not that strong.
It seemed my heart was breaking.
I have loved him for so long.

I will not give up on this child.
I will listen to your advice.
I will give my child any chance.
No matter what the price.
I will learn all that I need to help my child thrive.
I'll even use that feeding tube.
My child must survive!

Will he need a lot of therapy?
Will he gain the needed weight?
Please God, help me do this.
I will accept our fate.

When the monitors beep at night, it serves as my reminder.
How many parents would love that sound.
Tomorrow I will be kinder.
As another Angel earns his wings,
I run to my child's bed.
I watch him sleep for quite a while.
I bend down and kiss his head.
I cry for the parents whose hearts have been broken.
I look to You wondering why?
Oh Lord, I just can't know your ways....no matter how I try.

And yet, I trust you hold his life, and guide us through each day.
My mind says savor each moment he's here,
but my heart begs, "PLEASE let him stay"!

From pacing the surgical waiting room, to sitting by his bed.
From wishing for a good nights sleep, to learning every med.
From wondering, "will he be alright?", to watching him reach out his hands.
With every smile my heart just melts, despite life's harsh demands.

For all who see that faded line.
I look to them and smile.
You see my child is loved so much.
I would face ANY trial.
That scar I trace with my finger (It's the door to his beautiful heart).
God must have known how much I'd love him (Just as He loved him from the start).

A heart mom is always a heart mom.
Now wise beyond her years.
For those who have angels in heaven,
Our hearts share in all of your tears.

Every day I will try and remember,
I was chosen for him (and no other).
I will always embrace that beautiful day.......
When I became a "Heart Mother".

- Author Unknown

An adventurous few weeks...

Two Saturdays ago, Micah came down with the croup and an ear infection. That was such fun. He spent one night at Wentworth Douglas Hospital. He was on antibiotics for a few days, but then the following Friday I was changing his diaper and he had a massive rash and some swelling in a VERY sensitive place. So off to the ER we went and we found out he had gotten a fungal infection from the antibiotics he was on to help his ear infection. Ironic isn't it? He had to be transfered to The Eliot Hospital in Manchester for an emergency circumcision. He spent one night there and was sent home. He was sore for a few days after and was doing a wide leg crawl for a while. He has been doing much better now and has even had his first Christmas AT HOME. If you remember, last year he was in Boston last year for his first Christmas. Thank you all for all of your prayers, support, love, and well wishes over this year. I pray God blesses you all in the following year. May you know nothing but Peace, Joy, and Happiness next year. Merry Christmas!!!!

Sorry for the lack of info...

I'm sorry I haven't updated Micah's blog in a while. Life has found it's flow and it is a busy one. Micah has been doing great. Since his last surgery in May, he has managed to stay home and put on some real weight. He is 18 lbs 9.5 ozs and 27 3/4 inches long. He had his feeding tube removed a month ago and now he has a Mickey button to keep the whole open. He is crawling, cruising, and he can walk with a push toy. He has been doing great with physical therapy and Miss Hannah is amazed with his hard work. He still isn't talking yet but he'll be starting speech therapy soon. This past weekend he did have a little hiccup with his health. Friday he woke up wheezing and I tried to give him a breathing treatment but it didn't work. We eventually brought him to the ER and they thought he has pneumonia. They brought in a pediatrician who said he thought Micah simply had the Croup. They admitted him to Wentworth Douglas Hospital for the night and he was released the next morning. He thankfully only has the Croup and he is slowly recovering. There is some flu bug or whatever floating around, but hopefully he won't get it too badly. Thank you all for all of your prayer, love, and support over the last year with all of Micah's ups and downs.

MERRY CHRISTMAS !!!!!!!!!