SO VERY ICKY!!!!!!!!!!!!!

Micah's G-tube came out this morning. This is the tube that goes through his abdomen directly into his stomach. That means that for about 2 hours this morning there was an open HOLE coming out of my son's stomach. There are so many horrible things that can happen with something like that. So Jason and I dropped the older kiddos off at their grandparents house and we set out for Boston to figure out what to do next. Thankfully we didn't have to wait at all. They took him right back and checked out the HOLE. It had already begun to heal/close. So they had to use balloon catheters to open the HOLE up wider so they could place a new tube. He screamed, Jason held him down, and I sat in a chair feeling like I would faint or get sick. (I was so helpful) He's been fine since then, but it was all very unnerving. Especially when I removed his gauze this morning and saw the HOLE for the first time. Very EWWIE!!!!

MICAH'S GOING HOME TODAY!!!!!!!!!!!!!

YOU WILL NEVER GUESS WHAT MICAH'S NURSE JUST TOLD ME!!!!!!!!!!!!!!!!!!!!!!!! MICAH IS BEING RELEASED TODAY!!!!!!!!!!!!!!!!!!!!!! MICAH IS GOING HOME!!!!!!!!!!!!!!!!!!! WE ARE COMING HOME!!!!!!!!!!!!!!!!!!!! DR. BROWN THINKS THIS WAS JUST SOMETHING YUCKY CAUGHT IN HIS THROAT AND HE ASPIRATED IT AND THAT HE IS GOING TO BE OKAY!!!!!!!!!!!!!!!!!!!!!!!!!!!! MICAH'S GOING HOME!!!!!!!!!!!!!!!!!!!!!

Another bump...

Okay, slight hiccup. They were only going to keep Micah in the CICU (they made room for him) for a couple hours to watch him, but unfortunately while they were settling him in he got really upset and desated to the 40s. They are still going to continue to watch him, but he may stay in the CICU for longer.

They still have no idea what's causing all of this to happen. Please pray that they find something soon. He hasn't eaten since midnight, so I know he's hungry, so they are going to replace the NJ tube and begin feeding him in a few hours. Thankfully he's sleeping peacefully now.

Out of the OR

Micah just came out of the OR!!!!! His throat is a little narrow, but nothing anywhere near bad enough to cause him to stop breathing. It's good news and bead news. I'm thrilled his throat is fine, but now we still don't really have a clear idea of what's going on with him. I don't know what the next move is yet. I'll have to talk to Dr. Brown again. Thank you for all your prayers!!!!!

In Surgery...PRAY!!!!!!!

They just took Micah back into the OR. They were so kind and waited for me to get to the Pre Op area before they took him back. I got to see him and give him a kiss and he gave me one of his wonderful big toothless grins. The nurses and doctors have all fallen in love with him and have even threatened to take him home with them. LOL. I know they will take great care of him and bring him back safely to me. If they cannot extubate him after the Bronch Scope is done he will be sent to the ICU on the 7th floor (no room in CICU) until he is able to breath on his own again. But he came out of his last Bronch Scope like a champ and I am not expecting anything less from the Mighty Mr. Micah Man. Baby Mommy Loves You!!! Please pray, that they find whatever it was that stopped his breathing a couple days ago!!!!!!!

A visit from Dr.Brown

Finally saw Dr. Brown today. He spent the day bouncing between GI and General Surgery. Right now there are about two ideas. Doing the stomach wrap and placing a GJ tube. Jason and I are violently against the GJ tube, considering it did him so much harm in December. Hopefully ORL will find something and then we will have a better idea of what is going to happen next and what it will take to feed the sweet little baby.

To the OR tomorrow...

Okay so now we have a plan (of sorts) ORL was just here and they took a look at Micah and we chatted a bit. They were originally planning on doing another Bronch Scope and Balloon Dilation on Monday, but now they have him scheduled for tomorrow. This does mean going into the OR and being intubated. But this may give some clues to what happened the other night. I hope it does. We need to know what's happening to him.