Saturday, March 30, 2013

Hurray for good news!!!

Today Micah went to see his cardiologist (not pacer doc). They ran the usually Echo and EKG. I will admit I was nervous. Dr. Kaine is VERY happy with Micah's heart!!! His heart is pumping strong and is reacting well enough to the pacer that Dr. Kaine is going to recommend to the Boston team that they take Micah OFF his heart meds!!! Micah's pulmonary arteries are still small, but they are growing proportionally to the rest of his body. We are looking at a possible balloon cath in September to help open the arteries more and help Micah grow. Micah is still small for his age but he is at about the 23%. We are going to stay on the 6 month check up rotation here in Kansas and hopefully, after a new pacing generator, Micah will move to the 9 month rotation.

Tuesday, March 26, 2013

Team Mighty Micah Walks Again!!!

I am very excited to announce that Team Mighty Micah will be walking in this year's NStar Walk for Children's Hospital Boston. With all they have done for our sweet little heart hero, this seems like such an small show of gratitude. But if our team can raise even a little of our goal then maybe it can go to help a family who's sweet little fighter to go home. That maybe a scientist in a lab can find a cure. Maybe...just maybe it will help. Please donate to this amazing hospital...to this amazing group of angels on Earth. Everything is welcome. No donation is too small.


http://howtohelp.childrenshospital.org/walk/page/KS0056.htm