Nutrition check in

Today was a good day. Micah and I went to his nutrition appointment in Peabody and we met his new nutritionist. She was very nice and she kept repeating "Oh My Goodness" every time I explained his medical history or she went through his measurements or she saw what he was eating now. Micah is now 23lbs and 28 inches long. He is in the 40% for TOF babies!!!! Yay!!!!! We have been working so hard to get Micah up to a normal weight since December 2009 and we are finally getting there. With his heart condition he may never reach a "normal" weight, but he will at least be "normal" for him. Micah is such a tough little boy and he is an incredibly hard worker. He is walking more and more every day and he has even become more vocal. (No words yet, but lots of sounds) I am so proud of my little man and I know he has more in him to show to the world.

An amazing milestone

Micah's Dedication Video

An update...

Micah has been doing great lately. Aside from a couple of croup moments and the infection in his little boy parts he hasn't seen the inside of a hospital since his palate repair in May 2010. It's been incredible having him home and healthy. He has Physical Therapy with Miss Hannah every week and he has been exceeding all our expectations. He is standing on his own without having to hold anything for stability!!! He really is a miracle baby. With all that he has been through, he is one of the few people I have met in life with a good reason to be miserable and sour. He is a happy, thriving, and healthy baby boy. He loves playing with his brothers and sister, he loves to climb and "wrestle" Daddy, he has been climbing stair (with Mommy or Daddy with him) and there isn't a day that goes by without his smile and laugh. He is a blessing from God. Today, during PT, his big sister Emily got mad and started pouting. Micah stopped working with Miss Hannah and went to Emily and tried to make her happy. She smiled at him and gave him a hug and kiss. Miss Hannah and I were floored. I've never met a baby who was so caring!!!! I am so proud of my little man!!!! This Friday he will be 18 months old!!! Hurray!!!!! I can't wait!!!!!!

This really does explain it all...

One day my world came crashing down,
I'll never be the same.
They told me that my child was sick.
I thought, "am I to blame"?
I don't think I can handle this.
I am really not that strong.
It seemed my heart was breaking.
I have loved him for so long.

I will not give up on this child.
I will listen to your advice.
I will give my child any chance.
No matter what the price.
I will learn all that I need to help my child thrive.
I'll even use that feeding tube.
My child must survive!

Will he need a lot of therapy?
Will he gain the needed weight?
Please God, help me do this.
I will accept our fate.

When the monitors beep at night, it serves as my reminder.
How many parents would love that sound.
Tomorrow I will be kinder.
As another Angel earns his wings,
I run to my child's bed.
I watch him sleep for quite a while.
I bend down and kiss his head.
I cry for the parents whose hearts have been broken.
I look to You wondering why?
Oh Lord, I just can't know your ways....no matter how I try.

And yet, I trust you hold his life, and guide us through each day.
My mind says savor each moment he's here,
but my heart begs, "PLEASE let him stay"!

From pacing the surgical waiting room, to sitting by his bed.
From wishing for a good nights sleep, to learning every med.
From wondering, "will he be alright?", to watching him reach out his hands.
With every smile my heart just melts, despite life's harsh demands.

For all who see that faded line.
I look to them and smile.
You see my child is loved so much.
I would face ANY trial.
That scar I trace with my finger (It's the door to his beautiful heart).
God must have known how much I'd love him (Just as He loved him from the start).

A heart mom is always a heart mom.
Now wise beyond her years.
For those who have angels in heaven,
Our hearts share in all of your tears.

Every day I will try and remember,
I was chosen for him (and no other).
I will always embrace that beautiful day.......
When I became a "Heart Mother".

- Author Unknown