Going home!!!!!

WE ARE GOING HOME!!!!!!!! THE PLASTICS TEAM JUST CAME BY AND THEY SAID MICAH LOOKS AWESOME!!!!!!!!!!!!! HIS NURSE IS TRYING TO GET ALL THE PAPERS TOGETHER SO WE CAN GO HOME SOON!!!!!!!!!!! I AM SOOOOOOO EXCITED!!!!!!!!!!!!!!! MICAH IS ACTUALLY FOLLOWING THE PLAN!!!!!!!!

8 East.....tomorrow going home

Micah is on 8 East!!!!!! He is doing great!!!!!! He got a little rash from the ampcilin that he was on, but some Benadryl cleared that up nicely!!!! He is resting now, no IVs going and they are feeding him at almost full strength!!!! It looks like we are going home tomorrow!!! The plastics team wanted to send him home today, but the cardiac team said no. Much better to be safe than sorry!!!!!

Finally resting!!!

Micah is finally resting!!! After his surgery he was very upset and uncomfortable. It has taken most of the afternoon, but the doctors and nurses have found the point where his pain is manageable and he has exhausted himself. He is drifting in and out of sleep now. I also think he has his hearing back!!!! He has been jumping and responding to noises he never would have noticed before!!!! Yay!!!!

Out of Surgery!!!! (and more good news!!!!)

MICAH IS OUT OF SURGERY!!!!!!!!!!!! EVERYTHING WENT PERFECTLY!!!!!!!!!!! THE EAR TUBES ARE IN, THE PALATE IS CLOSED AND HE IS RECOVERING ON 8 SOUTH!!!!!!!!!!!!!!!!!!!!!!

Dr. Meira and Dr. Cavanagh were both VERY impressed with how well Micah did!!!!!! The anesthesiologist was also very happy with how well Micah went under and woke up. Apparently Micah woke up very angry and with some fight in him. A very good sign!!!!! Now he needs to rest!!!!!!!!!! Thank you all for all your prayers!!!!!! They worked!!!!!!!

2 down, 1 to go!!!!!!

The ENT doctor was just here to talk to us!!!! Micah is doing great!!! The tubes went into
his ears just fine!!! There was more fluid in his right ear than his left, but they were able
to drain it all and in about a month we'll bring him back to check his hearing again. They
also checked his throat and that is looking awesome too!!! The stenosis has not
worsened and has actually improved a little!!!! Dr. Meira (Plastic Surgeon) has begun the
repair to Micah's palate and that will take about 1 1/2 hour-2 hours. Please keep the
prayers going!!!! They are working!!!!

Starting the day with a miracle!!!!

God works miracles!!! Our alarm clock did not go off this morning and we ended up missing every bus that would get us here on time. So we had to drive, without maps or GPS. There was almost no traffic, almost all green lights, and I didn't get lost!!! We got here with 10 minutes to spare. Micah is on his way to the OR now!!! All of the doctors and nurses look well rested and ready for Micah. They are all very confident that Micah will be just fine before during and after the surgery. They are closing his palate, placing tubes in his ears, and checking the stenosis in his throat. I know God is with my baby now as much or more than He was when He got us here safely. Please Pray!!!!

24 hours left...

In about 24 hours, Micah will be recovering from his next surgery. Tomorrow morning he goes in to the operating room to close his palate cleft and to place tubes in his ears. This surgery will hopefully help him to eat like a normal baby and then the GJ tube can come out. We will also find out if he does or does not have hearing. Please pray for Micah and the surgeons working on him!!!!!

Another normal appointment.....

We just got back from Micah's appointment. He is doing really well. He's still not in a percentile, BUT he is growing. Dr. Gates was SO happy to see him and to see that he actually has NOT been in the hospital in a little over a MONTH!!!! His lungs are clear and his heart is as noisy as ever. (always good) He did get his H1N1 and Flu shots today. And that is good since he'll be in the hospital in 1 week.

An incredible difference...

Here are the pictures from Micah when he was in the Cnopf' Sche Kinderklink in Nuremberg, Germany, the day after his first heart surgery and now. He'll be going back into surgery to repair his cleft palate and to place tubes in his ears next Thursday. Hopefully it'll be the last surgery until the end of the year when his pace maker needs to be replaced.

All clear!!!!

Micah is clear for his next surgery. His heart is strong enough to handle the procedure. He has also put on the weight he lost from his hospital stay in April. So on May 27th he'll be going back in to the Operating Room to repair his cleft palate and to place tubes in his ears. Everyone is extremely happy with the progress he's making.

HE'S PUTTING ON WEIGHT!!!!!!

MICAH HAS CROSSED BACK INTO THE 13 LBS RANGE!!! I AM SOOO EXCITED!!! HE'S BEEN FIGHTING TO REGAIN HIS WEIGHT SINCE APRIL!!!! I COULD NOT BE MORE PROUD OF MY TINY MAN!!!! So far pre op day is going well. He's really sore from his tube change though. Hopefully it'll pass!!!

Tomorrow, tomorrow...

Micah is going to Boston Children's Hospital tomorrow for his Pre Op Day. His is due to have surgery on his cleft palate and tubes placed in his ears. Even though this is a "minor" surgery I am still very nervous for my baby. On May 27th Micah will be entering operating room for the 5th time in his short life. Please pray that all goes well tomorrow and on the 27th.

MORE GOOD NEWS!!!!!!!!!!!

Micah had his echo this afternoon. It took a little while to get him calmed down and asleep (LONG night last night), but the tech was able to get some really good pics of Micah's heart. And guess what, HIS HEART IS IMPROVING!! HIS PULMONARY ARTERY IS GROWING AND GETTING WIDER, THE PRESSURE IN HIS HEART IS DOWN AND SOME OF THE LEAKS AROUND HIS VSD PATCH HAVE CLOSED!! HE IS CLEAR FOR HIS NEXT SURGERY!!

9 months old!!!!!!!!

Today Micah turned 9 months old!!!!!!!!!!!! And he's home for it!!!!!!!!

Just a couple of days.....

On Tuesday May 4th, Micah will be 9 months old!!! He is such a tough little baby!!! Some days are easy and some days he has had to fight hard, and so far he's winning!!!! He is still WAY smaller than most 9 month old babies, but he is slowly getting bigger and stronger. This is going to be a busy month for him, he has appointments in Boston and here in NH every week this month. It is all to get ready for him next surgery. On the 27th he'll be going back in to the Operating Room to close his Cleft Palate and to place tubes in his ears. Compared to his past procedures, it's a minor surgery but I don't think anyone can say that an operation on their baby is minor. It's always scary. He is a tough little guy and I know God will protect him through it. This surgery will make it so he has suction and will, hopefully, be able to start eating as a normal baby. He should only be in the hospital for a few days, but the last time I was told that he was in the hospital for 3 weeks and again for 5 weeks.

Unfortunately we can't say this is his last procedure. There is scar tissue developing around the leads of his pace maker and it is forcing the pacer box to draw more power from the battery than normal. He only has about a year left of the battery. So they are going to have to go back into his chest to replace the battery and to clear away some of the scar tissue. Thankfully it won't be until maybe the end of this year/beginning of next year. I'd really like to keep my baby home for more than a couple months. I am looking forward to celebrating another birthday with Micah in our home. Isn't is amazing how the months fly by with babies?