Thursday, December 27, 2012

And so it begins...

Last night Micah spiked a fever and began complaining of ear pain. He took him straight to the ER and they said he didn't have an ear infection but he did have bronchitis. He and I barely slept last night. He coughed and whimpered all night and I ran his nebulizer every hour. He has barely eaten in the last 24 hours and has almost no energy. He usually runs around the house all day and refuses to take naps. Yesterday, and so far today, he has spent his time on the couch watching movies and coughing.
Sadly with his Tetrology of Fallot, his immune system is a lot weaker than a normal kid. Every time he gets sick, it gets worse very quickly. He has gone from sniffles to RSV in a matter of 48 hour in the past. With bronchitis, he could get pneumonia very easily. Please please pray that his doctor has a way of easing his breathing (especially while he sleeps) and that they have an antibiotic to kick this thing out of his body. The Kansas City hospital is so far away and I don't know if our base hospital can handle him.

Wednesday, December 5, 2012

We met the new pacer team!

For those keeping up...Micah had an appointment in Kansas City to meet with his new pace maker team. They are very thorough there. We waited a little while because everyone involved was reading Micah's "novel". They ran 2 EKGs and did a FULL pacer interrogation. There is something heartbreaking about your 3 year old grabbing his chest and saying "Ow! I don't like tha
t! Mommy make her stop!" It is amazing, though, that he knew that the nurse running the interrogation was the one messing with his heart rate. They were also amazed at how well behaved he was. He stayed still for everyone. The pacer doctor even said that they need to send all of their babies to Boston to learn how to behave in an examination. Results! Micah's battery only has about 1 1/2 year - 2 years left. His right ventricle is pulling more energy than they were expecting. They are hoping that this is only because he is fighting off a cold virus and that in 2 months everything will be fine. If not then Boston will need to make a decision about changing the battery again soon. Everything else looks good. All chambers are firing and his heart rate is perfect. Please pray that his heart is only drawing more power because of his cold and that there is no underlying cardiac problems."